New Year's Eve

This has been a really nice day.  Bill and Jon had a "date day" and so did Jess and I.  Bill and Jon went out to the show and lunch.  Jess and I went grocery shopping then out to lunch.  Bill and I also went out Christmas 2011 shopping.  Got some really good deals.  No more shopping for me this year.  I'm done!

I just want to THANK everyone who has been following my blog, supporting us in friendship and prayer this year.  As I have said many times, this has been the worst year of my life.  Yet, I have received the most favor and blessings from God than I ever have.  To be given more time with my wonderful husband is the best gift of all.  He is my best friend, my knight in shining armor.  May all the glory go to our Heavenly Father who is worthy of our praise at all times. 

Thank you, Jesus!

A Real Date

Today was a normal Thursday with several hours at my mom's.  However, at 4:30, Bill and I left and went on a "real date".  We went out to dinner at Filippa's (had a coupon) then visited Diane and Randie.  We RARELY go out to dinner - lunch or breakfast is always cheaper.  And, it always seems that on a "date day" we end up shopping.  Not this time.  The best part of the evening was how blessed we are to have been able to go out.  It's been 6 months and 1 week since Bill began chemo and I never thought we'd be able to go out because he's been feeling so bad.  He's grateful for the 2 weeks the doctor gave him off of chemo.  He said that he's finally feeling like his old self.  It was a nice date.

Yesterday and Today's Post

Did anyone notice that I didn't blog last night?  I think I've missed about 3 times since September.  I started with hives before dinner and after a half hour it became evident that they were getting worse so I had to take Benedryl.  It's the only medication that knocks me right out and I only take it if I'm desperate.  I was asleep by 7:30 p.m. and out of bed this morning at 8:30 p.m.!  Maybe that's why I'm having back spasms today.  Way too long in bed.  Oh, well.  Enough about me.

Bill has had two really great days!  Yesterday he went to the Hobby Shop with Jon and bought another model to work on, as he finished his engine.  He bought a semi truck model which will probably take him months to finish!  Today, he did all the wash, and that requires going up and down stairs.  Right now he's on the couch.  Tired but happy that he was able to do so much these past two days.  We are greatful for continued prayers for Bill and our family. 

Picked Clean

I decided I wasn't going to go into Kohl's again until my bill was paid, but then I received a gift card from Bill for Christmas.  So, Bill, Jess and I went to Kohl's by Lakeside, walked around one isle and left.  There were so many people there that Jessie kept her hood up and I could tell she would have had a panic attack.  After I brought her home I went to "our" Kohl's and bought 2 shirts.  I was also hoping to find some really great Christmas deals, but the shelves were picked clean.  Valentine's towels, etc. were in the place of Christmas.  Not even a Christmas mug. A few ornaments, that's it.  That and about 75 people in the return line, with only 2 people behind the counter.  Nuts.

We are extremely thankful that Bill doesn't have to have chemo again until January 5.  This gives him 2 weeks to build up his strength and have some days without nausea before the cycle begins again.  He went with Jess and I on "Girl's Day Out" and didn't even take a nap when we got home!  This is great!

The Day After Christmas

Well, the day didn't go like I had planned, but what day does?  Bill, Mom S and I went to church at 11:00.  Jon drove Jessie home then came back for us.  About 10 minutes before we got out of service, Diane called to let us know that she couldn't get hold of our mom.  So, Bill took Mom S and Jess home and Jon and I went to check on her. 

What happened next can be called funny now, but wasn't when it happened.  I let Jon go in and check on her (well, after all he IS a nurse!).  He kept calling her name and no answer.  He figured she had passed away in the night.  He was right next to her bed calling her name and no answer so he reached down to check the pulse in her neck when she let out a large snore.  Scared the crap out of Jon.  He yelled at me to come on back that she was still breathing but she still didn't hear him.  We had to shake her awake.  She was a bit surprised to find us in her bedroom and that it was after 12:30 !!!!! 

Jon went home and I helped her get moving, dressed and got her breakfast.  Jon went home and came back for me around 3:00.  When I got home I told Bill that it sure was a long trip home from church! 

Bill said he had a good day.  Boring, but good.  We'll take it!

Christmas Day

Every Easter morning and every Christmas morning, Bill and I get downstairs before we let the kids come down and we always get a picture of them waiting behind the gate.  Same this year.  Plus, I've got a picture of Jessie flying down the stairs on her butt.  Does she look excited or what? 

 I wish I had my video camera working this morning, as Jess was the most animated she's ever been over her gifts.  Each one was greeted like it was THE gift she's been waiting for.  Ooh's, aah's, wow's and cute were the norm this morning.  She kept giving us all hugs, too.  She was so appreciative of all she got.  She surpassed her "ten presents" that she wants each year. 

The joke is on me, though, as I bought Jon a whistling key chain finder because he's continually misplacing his keys.  The joke?  I just found out today he can't whistle!

It was a very nice family day.  We watched a couple DVD's, I took a short nap and just enjoyed each other's company.  We hope that you, too, had a very nice Christmas. 

Christmas Eve Traditions

When I was growing up we always celebrated Christmas on Christmas Eve because of my dad's work schedule as a Detroit Policeman.  He was either working or sleeping on Christmas Day.  We began with going to my dad's parents house in the early afternoon, because Santa would have been there already(Grandma and Grandpa were on the early drop-off schedule).  My dad would get us kids into the car plus all the presents and my mom would be the last one to get in the car.  It took her forever!  What I didn't know until years later, was that she was making many trips up and down the stairs to the hiding spot and putting all the presents around the tree so that when we arrived back home, we'd have our Christmas.  (I guess we were on the second early drop-off schedule). 

When I married Bill, we continued the Jonas tradition by being with my family on Christmas Eve and Bill's sister's family (until their move to Georgia) on Christmas Day.  Rarely have we not celebrated with family on Christmas Eve. 

I can count on one hand the number of times we've gone to Christmas Eve service because of our tradition.  After my dad died in 1978, my friend, Sherry, invited my mom and I to her parent's church for service.  The next two times were in 2000 and tonight.  Bill felt well enough that we were able to go and even take my mom, who spent the day with us.  It was very nice and special, with the topic being miracles. 

When Bill was first diagnosed with terminal cancer, I thought that he'd be in Heaven for Christmas.  I praise God for our miracle this year.  Miracles are for the Glory of God, and may this miracle be just that.  Thank God, for our miracle.  We are humbled by your blessing.

Merry Christmas to all, and to all ... a good night! 

The Thursday Before Christmas

I thought I'd publish a picture of my Christmas table settings.  We sit down every evening as a family and have dinner together.  I enjoy this time, and especially when I can use my Christmas dishes. 

Bill is feeling much better than yesterday, but he's also been sleeping most of the day and evening.  Still asleep on the couch.  Not sure why. Sleeping day and night is a bit unusual for him. 

I spent some time with my mom today.  It's quite sad that her dimentia is getting so much worse and that she can't even remember that tomorrow is Christmas Eve. 

Wednesday Before Christmas

Just in case you don't know, this is my second post of the day.  Please see the one below, as it has some very EXCITING news.  I'm still unable to comprehend it all.  Actually, I'm a little numb.  A good numb, but still numb.  I feel so honored that Jesus would choose to do this for Bill (and us, of course!). 

Unfortunately, Bill hasn't been able to "celebrate" the good news as he is very sick.  "I haven't been this sick in years!" he told me earlier.  I think he has the flu.  We'll see how he is in the morning. 

An Early Blog ... You Need To Read This Now!

We just got back from Bill’s doctor appointment where we got the results of the PET scan he had last week.   The comment from the doctor on the bottom of Bill’s chart simply reads: “Wow!”  It was a VERY unusual PET scan result considering Bill’s diagnosis of terminal cancer.  The only area that “lit up” was the esophagus.  No other “hot spots” were on the PET scan.  Our doctor even called the radiologist to see if they had the correct scan.  There’s still a 20% chance that the tumors are still there, but dormant.  I asked the doctor if he’d consider it a miracle, but he wouldn’t go there just yet.  However, he doesn’t see many results like this. 

What can I personally say?  THANK YOU, JESUS!  THANK YOU everyone, for praying.  Please don’t stop praying.  We are extremely pleased with these results.  Our next step is to continue chemo on Wednesday, January 5, then a CT scan (this will measure tumors) in 6 weeks.  MERRY CHRISTMAS, everyone!!!!!!

Tuesday Before Christmas

Today was our annual Christmas Dinner out, only we go at lunch time since it's cheaper.  Bill, Jon and I went to Red Lobster.  We had a very nice dinner and time together. Jessie and Shannon went to the Library.  Jon spent the afternoon and evening at church for the junior high group.  I finished our Christmas cards and Jess played on the iPad.  "All" I have to do now is wrap presents.

Please remember us tomorrow as we get results from Bill's PET scan.  Pray for God's peace and wisdom.  Have a good night.

Monday Before Christmas

Here are a few pictures from yesterday's Jonas Christmas: 

Today began with a very nice breakfast out with a good friend.  Did some paperwork when I got home then Jess and I had "Big Girls Day Out" again.  She was singing her kids hymns at the top of her lungs in the van then we both enjoyed a picnic.  Took McDonald's to Mae Stecker Park and ate in the van looking out over the frozen pond.  It was a beautiful day, wasn't it?

Bill had a pretty good day, until he got the service station call that the repair bill for his truck will be over $700.00!  Oh, well.  Just add it to the previous four bills for the van.  We do need dependable vehicles.  That is a must.

Bill and Jon went to the Monday Night Men's Group Christmas Dinner tonight.  They both had a nice time.  I spent the evening writing out a few more Christmas cards and Jess played on the iPad. 

Jonas Christmas Party Day

The Jonas side of the family always celebrates Christmas on Christmas Eve.  We've only had to deviate from this date a couple of times in decades.  This year is one of them.  Because we won't know for sure if Bill has chemo on Thursday, we decided to celebrate early so that he would be able to enjoy it. 

Bill wasn't feeling quite like he has the past several days, but we were able to go to church (AFTER the truck was towed in because it wouldn't start!).  Bill brought Jess home and put the chicken pot pies in the oven.  It was great being in church again.  We are blessed to be a part of a wonderful church family who cares for us. 

Diane, Randie and my mom arrived around 2:00.  We ate dinner, had dessert then opened presents.  We played Jessie's new Apples 2 Apples Disney game then had snacks.  A very nice day.

I would have posted pictures but something is wrong with my camera cord and I can't get it into the camera.  Will have to have it looked at tomorrow. 

Unfortunately, Jessie's yelling at me that we have to put out cookies and milk for Santa tonight.  She was OK with an early Christmas, but now she wants "ten presents" in the morning and snacks for Santa.  I have a feeling it's going to be a very L-O-N-G week.

Professional Shoppers

Another great physical day for Bill.  What a blessing.  We are so very greatful that he has had some really good days and been able to get out.  We are absolutely positive it is because so many people are praying.  Thank you, thank you, thank you!

We left the house at 8:30 this morning and got home at 12:30.  Mission accomplished.  Christmas shopping is done, as well as grocery shopping.  Now, if you were to see us in Meijer's you'd see a grocery cart piled high and think it was all for us.  Not.  I consider myself a "professional shopper" as I do shopping for several people.  I not only purchase items for us, I buy for Mom Jonas, Mom Sutton, Jessie and Lois.  So, in the basket I sometimes have to keep 5 orders separate.  We go to the self serve check outs and Bill does all the packing and keeps the orders separate in the basket.  Actually, I enjoy it.  We make a good team!

3rd Shot Done! YAH!

Diane picked me up for the third time this morning and took me for my last of 3 shots in my knee.  When the PA came in the room, I told him he could NOT hurt me this time.  He gave me extra numbing medicine and it was even better than the first.  Don't have to go back for 3 months for a recheck.  Yah!

Bill felt well enough to go with Jon and do last minute Christmas shopping then rested in the afternoon.  Jessie and Shannon went out to breakfast then baked gingerbread cookies.  Jon's best friend, Jacob, is home for Christmas break and they spent time together killing zombies. 

Countdown ... 8 days til Christmas.  I'm not ready.

Another Whirlwind Day

As Shannon was coming in the front door at 9:00 a.m., we were leaving.  When she was leaving at 4:30 p.m., we were finally getting home.  Bill had his PET scan today.  We were supposed to be there at 9:45 with a 10:15 test time.  We were told that it only takes about 15 minutes.  What they didn't tell us was that after being injected with the nuclear sugar, Bill had to relax for 90 minutes!  The time went fast, though, as we both played a "States" game on the iPad.  Naturally, Bill was smarter than I was (always has been).

We have a doctor's appointment scheduled for next Wednesday to get the results of the PET scan.  Waiting is the hardest.  It will be determined then if Bill should have more chemo or not.  Please pray.

After the test we went to lunch, to a Medical Supply store, Kroger's, a bakery for mom, my mom's for several hours, made a delivery for someone, post office and finally home.  I was so thankful to put a lasagna in the oven that our friend, Pat, brought over last night.  All I had to do was set the table. 

Bill felt pretty good today.  He's not been able to sleep all the way through the nights again, so he's been up since 4:30 this morning.  He went to bed early. 

Thank You, Jesus, For Humor

Tomorrow Bill will be having a PET scan.  The nurse told us that there was no prep for the test.  That wasn't exactly true.  For dinner he could only have protein ... steak, green beans and a lettuce salad with Italian dressing.  Nothing else.  And, for 24 hours prior to the scan, he wasn't to exercise or exert himself in any way.  Not even chew gum!  I'll have to ask tomorrow why.

Anyway, I was going through a bag of decorations my mom gave me so that I could make tiebacks for the door curtains.  Bill got unusually quiet and when I looked over at him ... well ... the picture tells all.  He had greenery on his head and puckered lips.  What I didn't realize until later, was that the greenery was misteltoe!  I missed my chance.  Oh, well, we wouldn't want him to kiss away and have hot lips on the scan tomorrow.  I'm so glad he's such a good sport and a very funny guy!

I had a very nice lunch out with my friend, Kathy, today.  I love visiting with her and talking Jesus.  I'm thankful that God has given us friends.  Friends who help carry our heavy loads.  Thank you, Jesus, for friends.

Another Blustery Day

And I wasn't even in the Hundred Acre Woods!  The van was ready at 10:30 (new major belt) and Bill and I went to get it after I got gas for his truck.  If you get gas at Meijer's you know how windy it is at the gas tanks.  I was frozen!

Bill's friend, Phil, has called many times in the past several months to see how Bill is doing and then takes him out to either breakfast or lunch.  Today they went to lunch.  He had a nice time but then was wiped out for the rest of the day.  Probably because he was getting ice melter ready for us in several containers, out in the cold.  He went to bed early.

I had alot of running around to do this afternoon and Jon went with me.  I really enjoy time with my son.  He's a neat young man.  We went to the post office, Rite Aid, bank, Walgreen's, lunch, a florist, my mom's and Kohl's.  I hadn't intended to do Christmas shopping but I bought several gifts and I'm almost done.  That's a good feeling.

The Weather Outside Is Frightful!

 It's been a VERY long time since I've been out in such cold, blustery and snowy weather.  Jon used the snowblower on both driveways and I tried to shovel the porches and sidewalks.  Unfortunately, under the snow was a thick layer of ice.  Ice melter was useless. 

I didn't want Jess to go out because it was so cold, but she made such a fuss I let her.  The only thing showing outside was her glasses and nose.  She had a good time and didn't complain when we went inside. 

We had to take the van back in to the repair shop today because when Jon went to church yesterday he lost power - no brakes, no steering.  Panel lights flashing. Not good.  I sure hope that it is an inexpensive fix.  When we went out today I was surprised at how bad the roads still were!  Snow covered and icy. 
It was VERY beautiful, though.  The frosty snow hung heavy on bushes and trees.  It was sparkling with the bright sunshine, too.  

Aren't I cute in my snowmobile outfit?  It's at least 25 years old.  Some years it fits better than others!  This year I can get it zipped but can't bend over!

Today was a very hard day for Bill.  More mental than physical.

Paper Work, Paper Work, Paper Work

I am so sick of paperwork I could just scream!  I hate it so much, I tend to let it pile up and not do it daily.  Soooo, today was THE day to get caught up.  If I put it all together, I think I spent about 6 hours at my desk.  When you have a special needs child/adult, the paper work you have to keep track of is incredible.  My desk is now clean, checks are written and papers are filed away.  For today, anyway.

Only Jon went to church today.  I wasn't about to go and take my mom out in this mess that is still falling.  It's been nice looking out at the falling snow.  Thankfully, we have no where to go tomorrow. 

Today wasn't as good a day for Bill as the past 3 days.  He did a little on his engine model, but rested most of the day.  Maybe tomorrow will be better. 

I Hate Saturday Shopping

The only good part about grocery shopping today was that Bill felt well enough to venture out and go with me.  I've missed his presence at Meijer's.  He packs our groceries and we make a good shopping team.  My knee was so bad I used the electric shopping cart for half the store and then Bill used it the second half because he got tired.  (He also fixed the garage door today!)

There were so many people in the store it was unbelievable.  I know Saturday is a big shopping day, but this was more than a normal Saturday.  I didn't realize it until I got to the parking lot that everyone is stocking up for the big snow tonight and tomorrow.  That would explain it.  We also saw several people we haven't seen in years.  That was nice.

I put my leg up and iced my knee when I got home and played on the iPad.  Jess came downstairs, put her arm around me and watched me.  Next thing I knew, I was waking up with her asleep on my shoulder. I closed my eyes and went back to sleep.  Naps are so nice!

Christmas Dinner Out

The last couple of days have been pretty good for Bill.  In fact, we were able to go to our church's BYF Christmas Dinner this evening.  It was a nice evening out with good food, great friends, Christmas music by 5 men and their trumpets, and a timely message.  Thank you, Jesus, that we were able to be surrounded by our friends once again and enjoy their fellowship.

We came home to find a blue-faced Jessie.  Blue tongue, blue lips, cheeks and fingers.  Before I left she wanted to color with a new package of color wonder pens and paper.  We're not sure how she got so blue as there is no color on the pens - the pages turn color with the special pen.  Leave it to her!

Had my second shot today in my knee.  It hurt worse that the first one.  Next week the PA will also put in cortisone.  I'm sure I'll be alot better if I could just stay off my feet for a couple days.  How do I do that?  I'm trying, though.

I Am So Tired Of Busy Days

Bill's been cooped up for too long and would love to get out and go somewhere.  I've had to be out too much and want to stay home!  Today I dropped Jon off at a doctor's appointment and went shopping before I had to pick him up again.  We went to lunch then a doctor's appointment for me.  (Had already cancelled 2 appointments for my mom today because the van is still in the shop, otherwise we would have had MORE stops.)  Target and the Post Office before finally getting home. 

I have another doctor's appointment tomorrow but fortunately, Diane and Randie are taking me.  I will be having the second shot in my knee.  I'm looking forward to spending time with them, but not the shot. 

Bill had a better day today.  He had to watch Jess as Shannon wasn't able to be here yesterday or today.  (We'd appreciate your prayers for a medical issue for Shannon.)  Neither one was tied up when I got home, so that's good.  Guess Jess spent quite awhile on the iPad.  I've downloaded lots of books and games for her.  She needs her own!

Repairs, Repairs, Repairs

Last month our dishwasher needed to be replaced.  Then Bill reminded me that we needed new tires on the van before winter arrived, so we got them.  Next the ball bearings went out and needed replacing.  Yesterday the garage door springs broke and that needs to be repaired.  I'm just so thankful that I had just backed out the van when it broke.  Otherwise, we'd really be in trouble.  Today we had to have the van taken in again because of a leak in the front end.  Verdict: we need a new radiator.  All right, already!  Enough is enough!

This blog has been great in keeping family and friends updated on Bill's progress and family happenings.  However, the phone calls have ended.  If you get a chance, give Bill a call.  He's not having good days and he's gotten cabin fever.  This week has been especially hard.  I'm sure he'd like to hear from you.

This past summer I went to Diane's and we worked with hypertoufa.  One of my creations was a face.  Bill mounted it on a tree and we can see this guy wheneveer we look outside.  I felt he needed a hat for the Christmas season.  What do you think?

A Better Day For Bill

Today was a much better physical day for Bill.  He helped me prepare two rubbermaids and a box of envelopes to be shipped out to Lois tomorrow.  He did his mother's wash.  He took a long nap,  then he cleaned up the kitchen after dinner because I went out with some friends for a Christmas dinner celebration.  I think he spent the rest of the night on the couch.  He's doing a puzzle right now on the iPad.  We're both more than ready for bed.  Night all!

Monday's Third Post ... Make Sure You Read Them All

Just how cold was it today, anyway?  I had to take my mom to the doctor's and with the wind blowing it was freezing.  Thankfully the roads weren't icy when I left this morning. 

As you can see from Bill's picture, he was VERY cold inside.  (I'm so glad he's a good sport!)  Unfortunately, severe nausea and fatigue have been his constant companion these past few days.  Being cooped up in the house and feeling so sick (it's been 10 weeks with this certain kind of chemo), he's a bit down, too.  I'll have to think of something to cheer him up tomorrow.  Maybe I'll make him a honey-do list for when he IS feeling better.  Or not.

Manger Scene

I wanted you to see the manger scene that Lynzee and Ella put up.  The figures were my Grandma's dating back to 1947. They also decorated my year-round wreath with angels to represent the Heavenly Hosts.  Nice job, girls!

Yesterday's Post

Sorry there wasn't anything to read this morning, but Comcast was down last night.  It was pretty wide-spread, too, as my sister didn't have it either.  I had called and their message was: "We are having technical difficulties.  Please call back!"  At least it wasn't with my computer.

Anyway, thanks to Julie, Kylee, Lynzee, Jessica and Ella, I got my Christmas plates down, put away and the regular dishes stored.  I haven't had a Christmas Village in several years and Kylee and Jessica did that (see above).  Lynzee and Ella worked on a nativity set (I'll post this tonight).  Lynzee crawled into the Christmas closet and brought out all the boxes then put the empty ones back.  THANK YOU, girls, you did an awesome job!  I love you !!!!!

We ate sloppy joes and chips and celebrated Kylee's 14th birthday (Tuesday) with a delicious cake and moose track ice cream.  It was alot of fun and the decorating is done!

More tonight ... as long as Comcast is working!

Christmas Preparation

I think I mentioned the other day that thanks to Shannon, Jessie's tree is up and decorated.  Thought you might like to see it.  She has such a nice room, if I do say so myself.

I try to avoid shopping on Saturdays but it couldn't be helped this week.  Went to Meijer's, Target, and Kohl's.  Inside the stores wasn't bad, it was the parking lots.  There's alot of crazy people behind the wheel these days, and today they were all in those parking lots.

Thanks to Jon, all the wash was done and folded when I got home.  Thanks, Jon!  You're an awesome son.  He also kept Bill company today.  Unfortunately, Bill had a very bad day.  He hasn't been this sick since he began chemo.  He's been plastered to the couch all day and evening.  Hopefully, tomorrow will be better.

Sister Day

My sister took the day off and took me to the doctor's to get my first of three injections in my knee.  Why?  Because I didn't know what to expect, I'm a "chicken" and didn't want to go by myself, and she's a great sister.  One of the shots hurt alot (probably the numbing medication) and it FELT like he was blowing up my knee.  Di said that it LOOKED like he was blowing up my knee, too!  He also drained 17cc's of water off the knee.  I've kept it elevated and iced tonight.  It feels weird, but I think it is better.  I'm hoping for the best.

Both Bill and Jon have been teasing me about getting chicken side-effects from the shots, as it is made from the chicken comb.  At dinner I turned to Jon and had him look at my lip where it is swollen and red.  Before Jon could comment, Bill said, "That's where the beak grows!"  Cute.  Even with chemo he's still witty!

After my appointment Di treated me to a very special lunch at Lelly's in Auburn Hills.  Very elegant, great food and the home made chocolate ice cream was absolutely delicious.  Thanks, Di!  It was a very special treat.

All afternoon Diane was saying how tired she was and when I got home I could hardly keep my eyes open.  Looked at facebook tonight and several people posted that they were tired.  Wonder if we're getting ready to hibernate?  Bill's been sleeping off and on all day, although his excuse is the chemo.  Very red (steroids) and very tired.  He slept most of the night, though, which was good.  Jon's been in bed since 7:30 p.m.!  I guess we'll all be in bed early tonight.

Chemo Day

WOO HOO!  The nurse was able to get a good blood draw from Bill's port today with only minimal movements, although Bill claims she had him stand on his head!  We were in and out in 7 hours.  Thanks to Wes, Gary and Marilyn, those hours flew by.  We REALLY appreciate the time they spent with us.  The day flew by.  When Gary and Wes were there, I was able to go out to lunch and to a store.  That helped me alot, too. 

Jess had a good day today.  She and Shannon went to Meijer's then decorated her tree and did book work.  I'd tell you about Jon's day, but he said that there wasn't anything to write about.  I'm tired and off to bed!

Preparing For Tomorrow

Bill felt well enough this morning to go Christmas shopping (for me, of course).  He knows that he won't feel well for the next couple of weeks, so he tried to get it done today.  I went to mom's and worked today instead of tomorrow.  We bought a few groceries.  I put Jessie's tree up so that Shannon could help her decorate it tomorrow.  I made a special dinner and I packed our rolling back pack of things to do in the 7 hours that it will take for Bill's chemo infusions. 

We covet your continued prayers for Bill's infusion tomorrow and the next couple of weeks.  They will be difficult, especially with Christmas around the corner.   

A Very Blah Day

Today began with everyone (except Jess) oversleeping.  Most likely because it was so dark and rainy.  Bill didn't feel well the entire day and was depressed, although he said he didn't have anything to be depressed about!  I felt like I had been drugged until I drank some caffeinated pop late in the afternoon.  Jon never did look like he woke up!  Now Jess ... well, let's just say that she spent most of her day very crabby and extremely stubborn.  None of us are looking forward to Thursday - Chemo Day. 

On a better note, I put all the Harvest decorations away this afternnon and only found 6 items I had overlooked.  That's not too bad.  I need a separate building just for my seasonal decorations.  Also, we had soup and sandwiches for dinner and I gave Bill the soup spoons to put on the table and told him the biggest one was for him since his mouth was bigger.  When I went to eat my soup, guess who had the bigger spoon? Funny, Bill!

We're Praising God For Good Days

We know that Bill is having good days only because of God's people who are faithfully praying for him.  Not only did he go out for the morning, he and Jon went to Men's Group (from church) tonight.  Thanks, everyone!

Please remember Bill as he is scheduled for chemo again on Thursday. 

Jess and I had another great Girls Day Out.  I am so thrilled that Jessie actually looks forward to Mondays.  I didn't get any work done at home, but we enjoyed one another's company.  That's what is most important.  I'll do the work tomorrow.

What's On Your Christmas Tree?

Jess and I finished the tree tonight.  It takes many hours, but something that I really enjoy because there's alot of history on it.  I have made ornaments out of things like ... Jon's first comb, our wedding cake top, tiny small dishes I painted, a perfume bottle from my grandma, some really old knick knacks from my other grandma, ornaments from my parent's tree, and items that I don't necessarily want out all year but want to keep.  I have handmade ornaments and ornaments from places we've visited on vacations.  It is a very personal tree. 

Both kids have trees for their bedrooms with their own ornaments.  I've made ornaments for them out of small toys that they had growing up that they don't use anymore.  Each year they get Hallmark ornaments to add to them.  Jessie's tree is filled with sparkly beaded necklaces and bracelets.  Jon's has blue lights and Jessie multi-colored lights.  I saw a tree this year at Young's that I really wanted for her - it was purple with pink lights.  Just couldn't justify the cost!

Bill, my Mom and I were able to go to church today.  It was great being there and visiting with people we haven't seen in a long time.  It was a great sermon, too.  Bill felt good up to the afternoon when it went downhill.  Hopefully, tomorrow will be better.  He has chemo again on Thursday.

Saturday Fun

Bill, Jon and I went shopping for items that I need to ship to Lois.  Got everything but one item, so that is very good.  Bought Jess a couple things for Christmas.  Parking lots were crazier than the stores! 

When we got home Bill rested (he had another pretty good day!) and I relaxed for 2 hours.  I sat with my feet up and downloaded more applications to the iPad for everyone.  You may not believe this, but I don't usually just relax, especially for a couple hours.  It's hard for me to do that.  I feel guilty.  Sounds crazy, but it's the truth. 

Jess and Shannon went to see Tangled this afternoon.  Both liked it alot and Jess told Shannon she wants the DVD for home.  After dinner Jessie helped me decorate the lower third of the Christmas tree.  She took ornaments out of their boxes and handed them to me.  We hope to finish tomorrow.  Usually she doesn't want to help.  I'm glad she wants to do this with me this year. 

Lots Of Company

Today we had lots of company which made the day zip by.  First Jon's best friend, Jacob, came and they spent the day on Jon's Xbox, then they went to a "Left Over Party".  They're still there.

Our good friends, Ed and Doreen (from New Jersey) came and visited for awhile.  It was nice seeing them again.  Although, from the look on Jessie's face, she's not sure about Ed! 

Diane, Randie and my Mom came for dinner and brought everything!  Randie made beef vegetable soup, Diane made homemade cornbread and Randie made a ginger pumpkin ice cream dessert.  Yum!  Diane and I spent several hours updating our iPads and downloading new applications.  Can you tell how thrilled Bill and Mom were?  Actually, Bill said "I had a pretty good day today."  We'll take it!

Happy Thanksgiving

We had a very nice, quiet day.  While the turkey was roasting we put the lights on the tree.  We had boxed mashed potatoes, homemade gravy, boxed stuffing, canned sweet potatoes and a homemade corn bubble with frozen  biscuits.  Not to mention baby sweet pickles, green and black olives, pickled beets and cranberry sauce.  Then, it's not Thanksgiving (or Christmas) without our pumpkin ice cream pie for dessert. Yum!

My mom was here for the day and I think we all took naps except for Jess.  She's been on the iPad for hours!  Speaking of Jess, I think I've figured out why she's been so miserable.  This is the first time in 9 years that Grandma Sutton has been out of the house for an extended period of time.  She's always here - sitting in her chair.  Jessie is really worried about when she's coming back and if she has food to eat and where she's sleeping. 

We hope everyone had a very nice and memorable Thanksgiving.  We all have much to be thankful for. 

A Much Better Day

It only took me 25 minutes to calm Jess down this morning and she only had a couple episodes of anger during the day.  Thanks for praying.

Bill began his day with breakfast out with his friend, Al.  He was well enough (or just plain tired of hearing me ask him to do this job) to change burned out overhead cabinet lights in the kitchen.  We went out to lunch then as something very special, the four of us went out to dinner at a restaurant!  We sat in the very back and no one was around us, so Jess did well.  That was very nice.  We rarely get to eat out as a family.

How does it make you feel when young people come and visit "old" people?  It made us feel VERY special that they took the time to visit. Thanks, Cressalyn and Erin, for spending time with us today.

Thanks to Jon being with my mom today, I was able to get caught up on wash and Thanksgiving preparation.  I also felt much better.  I was not as stressed as I've been.  (Thank you, Amy, for praying for me each morning this week.  And, thank you, Julie, for calling me each day to check up on me.)

 

Please Pray For Jess

We'd appreciate your prayers for Jessie.  I'm not sure what all is going on in her head, but she's been very OCD lately.  Today was the worse she's ever been.  Took me an hour to calm her down this morning because she wanted "ten presents in the morning".  It's going to be a very long 32 days until Christmas.  That behavior lasted several hours today.  It's very wearing on us, to say the least. 

I wish I could help Jess.  I took her to a psychologist today who does play therapy with children but because of Jessie's lack of communication skills, she will not be able to help her.  I was very disappointed.  I had such high hopes that with all we're going through, she could help Jess - somehow - cope with life better. 

It was a hard day for me.  Bill didn't feel well, and Jon walked around the house with a half-numb face from dental work, which took at least 6 hours to wear off.  I'm sure counting on the prayers of our friends to keep us going, that's for sure.

I've got to think of something funny to relate, as so much serious stuff is getting me down!

A Too Full Day

Jon to doctor.  Bill, Nan and Jess to post office and my mom's.  Spent 3 1/2 hours there doing various things and being there with the PT and Nurse.  Bill and Jon home (Bill didn't feel very well today).  Jess and I to lunch for "Big Girls Day Out."  Home for 10 minutes and greeted Bill's sister, Ruth, her husband and son who are here overnight.  (They've come to take Mom Sutton to their home upnorth for Thanksgiving.)  Met my sister at an elder care lawyer then out for a quick dinner before I finally got home for the day around 6:30pm.  Too much, too much.  Best part of the day was actually sitting down with everyone and visiting for several hours.  That was nice.  Now off to bed. 

How Long Does It Take To Decorate?

When I worked, it was our tradition to set up the Christmas tree on Thanksgiving weekend.  Since I've been retired, we have tried to set it up one week before Thanksgiving.  I used to get it up in a couple of days.  Now ... well, the tree is up, that's about it.  Maybe tomorrow night I'll put the lights on.  A friend of mine offered to come help decorate.  Each day that sounds better and better, because it takes me over a week to decorate.  Now with my mom's care and all, it'll probably take two!

Did you happen to notice Bill's legs in the picture?  He's relaxing.  Been doing that for days, although he was able to go outside and finish the outdoor decorations today.  We are POSITIVE that he is having good days as a direct result of prayer.  Thank you for continuing to think of us and lift us to the throne.

The Snowflake Search Has Ended

Several years ago we purchased a large outdoor snowflake and mounted it over our front porch so that we can have it on for the Christmas Season, as well as January and February - especially when it snows.  One day last spring we looked outside and our snowflake had broken into several pieces and lay on the sidewalk.  I've been looking for one to replace it for a month, but no luck.  Diane and Randie told me to go to a place on Ryan south of 12 Mile Road (can't remember the name!).  Yah!  We don't have to look anymore.  This one is even nicer as it twinkles.  Oh, the simple pleasures in life. 

Bill had another good day today and he was able to be out with Jon and me.  It was such a beautiful day.  We enjoyed each other's company very much.  I love together days.

An Impromptu Family Date Day

For the first time in a very long time, the four of us went out together.  Shannon wasn't able to work today, so Jon took over Jessie's care but also had to go get blood work.  So, we all went with him then stopped at Wendy's for lunch.  Jessie was SO excited.  She kept laughing and singing at the top of her lungs along with her music CD's.  We also stopped at a couple hobby stores for Bill and Jon to look around.  Bill's almost done with his ship model, so today he bought himself a V8 engine model to help keep him busy.

Peak Day

I forgot to mention yesterday that Bill had a pretty good day.  Unfortunately, today hasn't been the same.  It's been pretty rough.  He did get a change of scenery, though, since he spent the day with me at my mom's house. 

Speaking of my mom, please continue to pray for Diane and I as we look into various home care options.  Mom doesn't believe she needs any help, so we are meeting resistance. I guess this is where "tough love" comes in to play.  I'm not really liking my role at the moment.

Jess has been much more challenging lately, too.  She probably picks up on the tension in the house and the fact that I have been gone alot lately.  She definitely hasn't been happy, that's for sure. 

Maybe tomorrow will be better.

The Star of Washington

We received a phone call from a long-time friend of ours yesterday.  He owns a business in Washington and years ago erected a very tall star that he lights during the Christmas Season.  Over the years we've told Bob how much we enjoy its presence - we can see it from the kids' front bedrooms and as you drive into Washington, it lights the way to our house.  For some reason, it means alot to us.  It just wouldn't be Christmas without the Star of Washington.

Anyway, Bob called to tell Bill that he was thinking about him, and in honor of Bill he lit the star early this year.  How awesome is that!  Instead of waiting until Thanksgiving, he had it turned on yesterday just for Bill.  Thanks, Bob.  You made our day (and Christmas Season) very special. 

Not Much To Say

Today was a paperwork day for me plus many loads of wash.  Jon was in and out and Jessie went to the Library with Shannon.  Bill wasn't feeling well this morning but improved in the afternoon.  He felt well enough to go with me to get the mail and a couple of prescriptions.  He also went with Jess and I down to my mom's tonight for several hours.  So for Bill, it was a better day than yesterday!  We'll take it.

Zombie Brains and Adios Mustache

I bet you're wondering where this is going!

Let me tell you about my day ... after getting up, dressed and taking care of Jessie and getting her breakfast, I cleaned up the kitchen and did some odds and ends.  Jon began washing clothes.  Then Jess and I left for our "Girls Day Out".  We went to the Salvation Army to drop off some things, to a friends' house to return a casserole dish, got gas then ate lunch at Wendy's.  To the post office and called Bill and told him I'd pick him up in two minutes to go to my mom's house.  Almost reaching 26 Mile I relized I had forgotten to go home and get Bill!  I hit my forehead and moaned.  Jessie said, "Stupid people?"   "No," I said.  "Stupid Momma!"

To Mom's to take Jon's place because he had a dental appointment.  Was there for the visiting nurse.  After she left we returned home just in time for a case worker meeting.  Paper work and phone calls had to be made before I began dinner.  By the time dinner was done and the kitchen cleaned up, I was DONE.

Just then, as Jon was going back downstairs to switch over the wash, I heard a loud crash.  He accidently kicked a very large glass jar of salsa down the basement stairs.  What a mess.  Glass and salsa all over the stairs, wall and floor.  As Jon was cleaning it up he commented that it looked just like what was left of zombie brains when they were blown up on a program he watched.  That did it.  I was out of there.

When I married Bill, he was a very clean shaven man.  On our honeymoon I encouraged him to grow a mustache.  It's been 27 years since I've seen that lip - he shaved his mustache off today.  It had been getting a little sparse.  Jon says he looks like a baby duck (I'll probably get in trouble for telling you this) and Jdessie just stared at him and touched his mouth. 

Bill's had another very hard day.  Very sick and plastered to the couch.  His days are long and discouraging.

We Miss Church

Bill and I have attended church all our lives.  It's something we grew up doing and we've been attending church and serving since we've been married.  We've raised our two children in church.  We attended as a family.  We worshipped as a family.  Church has been a very big and important part of our lives.

For this entire year, we have not been able to regularly attend church.  We miss it.  It's not just the service, because we can get the sermons on the church's web site.  Or, we can watch "church tv" (as Jessie calls it).  It's the fellowship.  I miss the handshakes, the hugs.  It's sharing in one another's lives.  It's laughing when someone shares a funny happening.  It's crying with someone who's had a hard week.  It's praying with someone you don't know, asking God to intervene. 

              Let us hold unswervenly to the hope we profess, for he who promised is faithful. And let us consider how we may spur one another on toward love and good deeds.  Let us not give up meeting together, as some are in the habit of doing, but let us encourage one another, and all the more as you see the Day approaching.   Hebrews 10:23-25.

Please pray for us especially on Sunday's.  This is one of the hardest days of the week for us.  Especially for Bill, who is not feeling well at all. 

"Too-Key Day Comin!"

I may not make it to Thanksgiving with my entire mind in tact (which isn't much).  Now that Halloween is over, Jessie is fixated on "Too-Key Day".  The entire day today she's been saying over and over and over: "Too-Key Day Comin!"  By the time I put her to bed she had to have said it AT LEAST 50 times.  Then she wanted me to put away ... NOW ... the Harvest decorations and put up the Christmas tree.  She was NOT happy when I told her it would have to wait at least another week. 

Spent a few hours before lunch outside with Jon helping him cut the lawn and pick up the leaves. Put a few more Christmas decorations up outside, too.  Jess and I went out to lunch and to Michael's and Kohl's.  Unfortunately, when we were in line at Michael's a young boy came up behind her and started screaming at his mom and set her off into a full-blown panic attack.  Poor, Jess.  She was screaming and crying herself.  Good thing I don't care what people think.  It was quite the scene. 

Bill worked a little bit on his model but wasn't feeling well most of the day.  Pretty crappy tonight.  He's back to not sleeping again - seems to be the pattern right after chemo.  He played putt putt golf on the iPad from 1:15 - 4:30 a.m.  A little down today, too.

So Much For Peanut Butter

Well, for the first time in months, the peanut butter didn't work.  Bill hiccupped for hours this morning.  Called the doctor and got a prescription for medication that should work.  However, a half hour of taking it, Bill had an adverse reaction to it and had distorted vision.  That was scary.  He's not taking that medication again.  The hiccups have continued, but other than those and the reaction, he's had a fairly good day.

I did not accomplish all I had set out to do today, but I guess I got done what was the most important.  Please continue to pray as Diane and I seek a solution to my mom's care. 

A Day Filled With Praises

Well, I must say that I am very glad that in a few minutes I can go to bed and call it a day.  It's been long and hard, but let me share with you some praises ...

* The nurse was able to draw blood from Bill's port within about 10 minutes.  Enough to meet their guidelines for infusion.  Also, his blood work results were terrific.  We are blessed with a great team of professionals who help Bill through the 6 hours of infusions.  They are a great support team.

* A friend of ours, Gary, came and spent almost 3 hours with Bill and they had a very nice visit.  Those 3 hours breezed by.  During that time I was able to walk across the street and be with my mom and sister and make some decisions. 

* Mom is sleeping in her own bed tonight.  The hospital doctor felt there wasn't any need for her to be in the hospital and she could go home.  Diane and I are working on her day-to-day care and supervision.  Diane had some great ideas and has begun to implement them.  I am so blessed to have a sister who is able to help in my mom's care.  So many families aren't that fortunate to have siblings that can work together.  I have a great sister!

*  We praise God that we have so many friends who love us, care about us, and pray for us.  Right now Bill is doing fairly well.  Other than fatigue, he's just been plagued with hiccups.  Bring on the ;peanut butter!
I'm calling it a day.  More tomorrow.  Good night.

P.S.  May I be the first to say ... "Good morning, Julie!"

A Challenging Day

Bill and I had our morning all planned - a nice breakfast out, a couple of stores and put the rest of the Christmas lights up outside.  Thought we'd go on a wild "fling" before chemo again tomorrow.  Unfortunately, I spent the entire day in the hospital ER with my mom who fell last night getting into bed.  She scraped and bruised her back pretty bad.  I asked her why she didn't call me last night and she said, "I don't know.  I think you needed your sleep." 

Anyway, she's still there and if the ER doctor has her way, she'll go straight to a nursing home.  Diane and I are frantically looking into other options.  We want her to stay in her own home.  Doesn't everyone?  Diane and I need your prayers as we gather information and make some tough decisions. 

This could not have come at a worse time.  I am torn between my husband and my mother. Tomorrow is Bill's chemo day - we have to be there by 9:00 a.m. and we usually don't leave until after 4:00 p.m.  Diane will take off work (she still works full time) and be there in the morning.  When I can, I'll "hike" across the street and check on Mom.  Hopefully, they'll have a motorized scooter I can use.  Otherwise, it might take me all day just to get there. 

We expected Bill to have a good day today but he didn't.  No pain, but was completely wiped out and was plastered to the couch again all day. 

Isaiah 41:10

So do not fear, for I am with you;
do not be dismayed, for I am your God.
I will strengthen you and help you,
I will uphold you with my righteous right hand.

Good News/Bad News

Thank you  to everyone who has been praying.  The CT scan results had some bad news (some cancer areas/tumors were larger) and good news (some cancer areas/tumors were smaller).  According to the PA we saw today (our Doctor's baby decided to arrive and he felt he should be with his wife!) they can't tell if the chemo is doing any good.  He's scheduled for another 2 rounds then another CT.  So, we just carry on as we have. 

This Thursday, November 11, is the next round.  The past treatment hit him alot harder and faster than the first one, so we're concerned how this one will be.  The next one will be 2 days before Christmas.  That's a big bummer, to be sure.  The pain he's been having most likely is from gallstones.

More tonight.  Thought you'd like to know earlier than my late posting time.

A Change In Routine

Shannon isn't working on Saturday, so she worked today instead.  Jess wasn't happy about that because she couldn't have "Big Girls Day Out."   I am so excited that she didn't want Shannon here.  Now, don't get me wrong.  We all love Shannon, Jessie especially, but when a daughter wants to spend time with her mom instead of her best friend, now that's VERY special.  That blessed me today, for sure!

Wasn't it a beautiful day?  The rest of the week is only going to get better.  A special thanks goes to our neighbor, Ed, who cleaned up our leaves with his riding lawn mower/sweeper.  All we had to do was put the leaves in the bags. We really appreciate it.

10-Pin Strike

I wish you could have seen Jess this morning while she was supposed to be watching TV church.  She was down on the floor with the iPad, playing 10-Pin Strike.  When she missed the pins she would yell "Oooohhhh!" along with the background "Oh's!".  When she got a spare or strike, she'd do a high five and yell "Yah!", right along with the background "Yah's!"  She played for almost an hour and only stopped because she needed breakfast.

This afternoon she played on it again - doing puzzles.  We have an app that allows you to use the pictures that are downloaded onto the iPad and turns them into puzzles.  I've got 83 pictures of Jessie on there and she puts them together.  What amazes me the most is that after she's done with one, there are several commands that you have to touch in order to get another puzzle - and she knows how to do it!  I had to delete the preschool puzzles I had downloaded for her - too simple.

A very quiet day.  Bill was in alot of pain and discomfort again but got relief from Darvocet.  I had a nice long nap and he cat napped.  Jon went to Sunday School which he really enjoys and watched tv or played computer games today.  You already know what Jess did.  

Synvisc-One

That's the name of the shot that I will be getting in December.  Sorry I didn't have it last night.  I only do stairs when it's absolutely necessary. 

Today was hair cut day and grocery shopping day.  Jon, Jess and I got our hair cut first thing in the morning and then Jon and I went to Kroger's and Bill and I went to Meijer's.  Although Bill was able to go out today, he has not had a good day.  He's been in a considerable amount of pain.  I'm now finding out that he isn't always telling us how bad he feels.  My heart aches for my wonderful husband.  I wish he didn't have to go through all this.  It just isn't fair. 

One of the hardest things for him is that he is unable to do the one thing he loves to do - work.  He fills his days with football games, the iPad and his model, but it just isn't the same. 

Cluck, Cluck !!!

I went to the surgeon today about my knee.  He walked in, looked at Bill and Jon and wanted to know why I had brought my body guards!  Cute.  The bottom line on my left knee is severe arthritis in the knee cap.  The torn miniscus is secondary.  Orthoscopic surgery could be done but he couldn't guarantee that it would even do any good.  Knee replacement would take care of it, but I'm not ready for that.  So, I am going to have 3 injections - one each week - beginning the first week in December.  I'll have to tell you what it's called in tomorrow's post because the paper is upstairs.  However, I do know that it is made from the chicken comb.  So, if you hear me cluck, you'll know I've had the shots!

Bill had a good morning and early afternoon again, and downhill after that.  He's been plastered to the couch since around 3:00. 

CT Scan Is Done

We were at the hospital by 9:15 a.m., Bill got his delicious drinks at 9:55 a.m. and finally got called back for the 10 minute CT scan at 11:50.  Whew!  We played on the iPad, I read some, looked over a report for Jessie's 6-month reevaluation for services and basically just waited and watched everyone else drink.  Bill offered to let me have some, but dispite his thoughtfulness, I let him have it all.  We'll get the results next Tuesday. 

We had a quick lunch in the hospital cafeteria, then drove across the street to drop in at the doctor's office to check on a huge hematoma on Bill's stomach where I gave him a shot the other day.  They drew blood to check his platelets, and even though his count is low, it isn't too low.  We will have to go back in the morning if it continues to spread.  Let's pray that it doesn't.

The Model Is Coming Along Nicely

Bill had another fairly good day today and was able to get out by himself for a bit.  He also spent time working on his ship model.  That and the iPad are keeping him occupied.  Oh, he also did a couple loads of wash, too.  Now that's a good day!

Tomorrow we go to the hospital for another CT scan.  We're hoping that the results will be good this time and the chemo will have shrunk some tumors and kept the cancer from getting worse.  We'll have the results next Tuesday.

I didn't have a good day again.  However, I think I have a reason.  It takes me awhile to put 2 and 2 together, but I might have a "4".  Six months ago I began a medication for the pain in my hips due to the 2 herniated discs I have.  This nerve medication wrecked havoc on my emotions for months.  Several days ago I began the step down in discontinuing the medication.  My depression, tears and severe fatigue could be as a result of stopping this drug.  We'll see.  

On Being Transparent

The Thorndike Barnhart dictionary says that being transparent means *easily seen through or detected and *free from pretense or decit; frank.

My intention behind this blog is to keep everyone up-dated on Bill's progress and Sutton happenings.  It is not meant to be depressing.  Despite what we are going through, we have good days - great days in fact.  Most days my fingers fly over the key board and sharing isn't a problem.  Except for times like tonight when my tears have flowed more than usual during the day.  If you were to look into my eyes, you would easily see that something is not right.  In being transparent, I've had a very difficult day emotionally.  No particular reason.  I just have. 

Bill and I enjoyed a lunch out with very dear and "old" friends today.  Bill grew up with this family and we are so grateful for their friendship, love and support.  Bill had a fairly good physical day. 

Jon's been sick for a couple weeks and had to go back to the doctor this afternoon.  Plus, he lost a filling and ended up in the dentist's chair, too.  Yuck!  Jess had a great day since they went to the "big library" (Clinton Macomb) for today's outing.  She really likes it there. 

A Spoonful of Sugar ...

... makes the medicine go down.  And a bowlful of ice cream makes the words flow better.  Well, I had to have some reason to eat it, didn't I?  Especially at this time of night since we don't usually eat after dinner. 

Bill had another good day.  It can only be because of prayer that he's been doing so well when he really shouldn't.  Today's Day 11 and he didn't feel yucky until after dinner. Thank you to all who have prayed that the side effects would be minimal.  Several people have told us that this is what they have specifically prayed for.  Thank you, God, for answering these specific prayers.

Bill and Jon had a good day together.  They went out to eat then worked at church for awhile.  Jess had to have blood work done this morning, then we went shopping for her Girls Day Out day.  Her speech teacher came and brought us donuts and cider from Blake's Cider Mill.  We also had a visit from friends from church this afternoon.  A nice day. 

A Pesus Pumpkin

Jessie enjoys her art time she has each week, and for the last couple of weeks Jessie and Shannon have been decorating pumpkins.  Jessie's favorite is her Pesus (Princess) Pumpkin.  What do you think?

When I tucked Jess in bed tonight, she said "Too-key day comin'!"  In other words, Thanksgiving is around the corner.  Bring on the turkeys!

Bill had a pretty good morning, working on his model, but has been feeling quite sick since dinner again. 

Pumpkin Cake

Earlier this week I was in JoAnn Fabrics and picked up a pumpkin cake pan (70% off).  Today Jess and Shannon baked and decorated two pumpkin cakes - one for us and one for Shannon.  Jessie had a great time baking and decorating the cake that we'll eat on Sunday. 

Jess had a great day.  For whatever reason she was in a great mood and had fun all day.  She was especially excited that her brother, Jon, came home.  (He went on an overnight men's retreat yesterday at our Wesleyan Campground in Vassar.)  As soon as he got home she wanted to go and help him unpack, which she did.  She kept hugging him and was so glad he came home!

Bill had a pretty good morning.  In fact, he went with me to Meijer's and McDonald's for lunch.  He did better than I did - my knee and back were not good and I was a little down, so I took a 2 hour nap when we got home.  After working on his model, however, he pooped out and has been down since.  He is discouraged since he's been doing so well.  However, it's only day 8, so being out for awhile today was good. 

Another Good Day

Two nights in a row Bill has slept the entire night.  He's only had a few hours of not feeling well today, too.  We have not expected such good days, since today is Day 8.  It can only be as a result of prayer and God granting Bill good physical days.  We are greatful.

Julie came for dinner tonight and we had an iPad 101 first lesson.  We helped each other learn new things and traded games we can play together.  Friends of ours came after dinner and brought a birthday cake and ice cream to celebrate Bill's birthday.  We all had a very enjoyable visit. 

Thank you, Jesus, for friends, a beautiful fall day, laughter and time spent together. 

French Toast

Today was such a good morning for Bill that we decided to try and go out to breakfast.  I had my usual and Bill had French Toast, something that he doesn't normally order.  All went well.  On to my mom's where I worked for several hours.  By then, Bill was more than ready to come home and veg on the couch.  It went downhill after dinner, but we are thankful for most of the day that he was not too bad.  Today is Day 7 when  the chemo side effects are supposed to peak.  It'll take another 7 days before the symptoms will be minimal - we hope.

Happy Birthday, Bill !!!!!

Thanks to the many people that called with birthday wishes, stopped by to visit, and an impromptu mini birthday party, I believe Bill's day was a success.  He was kept busy most of the day answering the telephone.  I helped out, too, since I was out and called home about 6 times and said, "Happy Birthday!"

For dessert we had Bill Knapp's birthday cake.  Remember when?  We always went to Bill Knapp's on our birthday's and got our year percentage off the meal and the free chocolate cake.  It still tastes the same. Yum. 

Thanks, everyone, for making Bill's birthday so special. 

Just Whose IPad Is It Anyway?

Thanks to the generosity of several people, we were able to buy an IPad for Bill to use on days that he just can't do much of anything else.  I've downloaded many games, news applications, educational items and books for his use.  It really has been the absolute best item we've purchased since our computer.  We ALL enjoy being on it, especially Jessie who, as you can see from this picture, enjoyed it for over an hour tonight.  She did NOT want to go to bed.

Tomorrow, October 27, is Bill's 64th birthday. Today he didn't feel too bad, so maybe he'll be in for a great day tomorrow.  If you know our phone number, give him a call and wish him a Happy Birthday.  I know he'll enjoy hearing from so many people.  Let's keep that phone ringing - just like a telethon, except you don't have to pledge any money!

Monday - Monday

I laid in bed this morning wondering what day it was.  Does anyone else ever get confused?  Jessie didn't forget - it was (big) Girls Day Out today.  (We have to add the "big" because no way is she going to add a little girl to our day!)

After 7 stops we finally made it home.  One of the stops was to Target where we bought Bill birthday presents - it's his 64th birthday on Wednesday.  We also got him a special cake but I can't tell you what kind it is because he reads my blog every morning and that would spoil the surprise.  I hope he's well enough to enjoy his day.  Today was not a good day again.  Very rough.  The days just get harder. 

What Does Jessie Know?

Many people have asked how Jessie is doing and how much she knows about Bill's cancer?  Over a month ago we decided that we needed to tell her about as much as she could process.  We told her that Daddy was very sick and he'd be sick for a very long time.  He'd have bad days, but he'd also have good days.  Almost every day she asks, "Daddy sick?"  She's a little fixated on his bald head, which makes us laugh because she rubs it and says, "Oh, baby!"

Besides the comfort and blessings that God gives us each day (which I might add are numerous), Jessie is another reason we go on.  She is a ray of sunshine on our cloudy days.  She enjoys making us laugh and then she laughs harder.  Someone once asked me if I ever imagined what she'd be like without Down Syndrome.  I never have.  Why should I?  She's perfect - just the way she is.

Thanks to another church lady friend, dinner was provided.  I am so greatful that I didn't have to fix a meal today.  I wasn't feeling up to par, and Bill's had a bad day.  Thank you, God!

A Day On The Couch

Day 2 after chemo hasn't been kind to Bill.  He's spent the entire day on the couch.  Severe nausea, bone pain, and general yuckiness.  He's also not able to sleep at night.  He can get to sleep, but can't stay asleep.  He was on the IPad for HOURS in the early morning hours and today.  I've been having to recharge it every night. 

My cousin, Terry, from Alaska, called this afternoon.  It was nice talking to him and he and Bill had a nice conversation.  That meant alot to Bill (me, too!).  We were blessed again with a delicious dinner from a friend of ours from church.  The meals that keep popping up now and then come on days that are hard for me and helps me out alot.  Thank you, thank you, thank you!

Jon had his best friend, Jacob, over for the afternoon.  Tonight he's at a friend's house for a small young-adult get-together.  Jess had a mini-melt down when Shannon went home early because she wasn't feeling well.  However, she managed to get it together and watched videos and played Bingo and cards.

Oh, The Smell Of Paint Fumes

Both Bill and Jon began their model ships today.  Jon's doing his in his bedroom and Bill's doing his in the family/dining room.  So, no matter what floor you're on, there's paint fumes.  Add in the fragrance of dinner and it's not really that bad.  Both boys are enjoying themselves.

Today is the first day after chemo and the side effects have begun.  Fatigue, nausea and hiccups were Bill's companions today. 

I tagged along with Jessie and Shannon for breakfast, then we went to Goike's and bought some more squash to eat and pumpkins for Jessie to paint.  It was a nice day, even though a tad bit cold.

Blessings

We made it through the day!  Thank you so very much for your prayers, and Thank You, Julie, for the phone call.  Even though the nurse was unable to get a blood draw from Bill's port at first, she didn't try different maneuvers today.  Instead she put in a drug that would break up any blood clots.  After a half hour, she got enough blood to begin infusions.  Seven hours later we were on our way home.  I did alot better than last time, too, which was a big plus.  No chest pains for Bill, either!  Horrah!

Last Saturday when the men came to help with yard work, there were a couple jobs that they were unable to do.  Word got around and thanks to Rod, 3 other adults and 17 teens from our church's discipleship group (that's right - 17 !!!!), the job was done in a half hour. It would have taken us until next summer.  What a blessing these teens were.  When they were finished, they all came inside, gathered in a circle and prayed for Bill and us.  That was very moving. 

Blessings abounded today - Thank You, Jesus!